Chemo Sesh #4: Reality Arrives

Chemo session number four. Saturday, 2/7/15.
Same drugs, same style, same shit. An RN manually pumps some of Vigo the Carpathian’s pink slime from Ghostbusters Two directly into my heart.

vigo the carpathian

My mouth adopts the taste of moldy bleach (I realize how little sense this makes) for an hour and my pee turns into peach cobbler. It’s the same every time, I know what to expect now, or so I thought…

Liana happened to be here to witness the chemo administration this time. I didn’t think she’d be terribly impressed by the process considering that she’s one of the most intellectually gifted people that I know. It’s nothing terribly stimulating to experience so she was forced to entertain herself by rolling her eyes at every bad joke I made to my RNs. Par for the course.

At least there is one pretty part of this picture collage.
At least there is one pretty part of this photo collage.

The process ends, everybody clears out and I go to bed at a decent hour in order to rest up for my mother’s arrival the next day. The end, right?

NOPE.

Shit is starting to get real with my treatment, unfortunately….

The following is a gonzo-esque stream of consciousness that I minimally edited for sense, clarity, and verb tense (though I’m sure my actual editors won’t believe the verb tense editing actually happened). It’s a real-time expression of a developing panic attack (like this one). It started mildly enough for me to grab my laptop, thankfully, because these exercises in cathartic vulnerability are very helpful and liberating. I have also been told that they provide valuable insight into the psyche of a patient going through a traumatic episode….and at this point I’d literally walk naked into a pile of rusty thumbtacks if it would help my RNs and Doctors in any way. The following is for them:

2/8/15

It’s 8am Sunday and I woke up very disoriented and frankly…terrified. I remember being woken up earlier for my nightly vitals at 5am or so feeling more confused than I ever have in the hospital (thorozine episode notwithstanding). I don’t remember going to bed, but apparently I put myself down earlier than normal and wanted to get a good night’s rest. I think at one point I woke up to use the bathroom and completely split the difference between my handheld urinal and the toilet in a daze of semi-conscious dream-pee. There was no evidence to this in the morning, so I either had the comatose wherewithal to clean it up or one of my guardian RN angels helped me or it didn’t happen.

I somewhat remember waking up later very confused, not knowing what I did, not knowing how I got there, not knowing what happened. A wave of fear crept over me, despite there being daylight, and I didn’t feel feel like me. I still don’t feel like me at the time of writing this.

I’m drinking coffee in bed right now trying to put it back together,  I’m shaking and tearing up. at this point I have no explanation other than maybe the round of chemo I took last night finally hit me. The Doctors and RNs have mentioned that the chemicals have a cumulative effect on the body and last night could have been my first step into the depths of the chasm.

I’m crying and shaking and wiping tears off my face. My mouth feels like it is developing a chemo sore, I’m alone in my room with a pillow on my face trying to fight off hyperventilation and confusion.

I’m alone in here in this room and head. This isn’t the first time I’ve had a moment like this, but I think it may be the first fully chemically induced. I went to bed feeling slightly down and lost, spiritually and artistically, but I did not expect to wake up feeling so personally and consciously disoriented. Now I’m teetering on the brink of emotional/mental collapse. I’m breaking. I’m coming apart, having trouble holding it together. Heart is beating faster, tears, face contortion, muscle clenching. Just scream. FUCKING SCREAM.

One of my Doctors just just walked in. He either heard or sensed that I was in the fit of a panic attack and is making efforts to calm me down by telling me about how his son’s taste in music mirrors mine. He is trying to snap me back to reality, using the smelling salts of familiarity and giving me some tangibly familiar concept to grasp my brain fingers around. It’s working. I’m calming. Im breathing. I coming back. It’s getting better I think.

He reminds me that I’m on very powerful chemo drugs, despite their lack of side effects so far. He says he had a young patient like me who would mountain bike his way to the hospital to take them for the first few times and then hop back on his bike and head home. Eventually he had to be driven, and then he had to come in and out on a wheelchair. These are powerful substances that don’t hit you right away but rather take a combined toll and they are starting to add up inside of me. My hope is that my sense of humor, perspective and whatever else I’m bringing to this will hold up better than the mountain bike method. I’m not pressuring myself to ride in here as fast as I can doing jumps over the mental curbs, but I don’t intend to be rolled in and out on an emotional stretcher, either.

He’s not worried and assures me that I shouldn’t be either. He’s smiling, complimenting my room and my attitude and trying to keep me with him. He can sense that I’m on the brink, but he’s doing a great job and he’s firming his hand over my weak grasp, because he knows I’m rebuilding the strength to be able to hold on without his help. My voice is cracking and my face is clenching but he sees me trying to regain the persona, attitude, and perspective that I have cultivated over the last couple of weeks and he’s pulling me back to where I need to be. It’s working.

He left the room and things things are getting better by the moment, caffeine is helping. Talking to friends on the computer is helping, they are guiding my hands and feet on the tightwalk of my narrative and everything is calming down and starting to feel familiar again. I’m breathing, my blood is slowing. I’ve got it back, but today is going to be a harder day than normal.  I’m going to make the best of it, though. I’m going to turn this mind dump into a post, and hopefully we can all find some humor in it…though today was a good reminder that this isn’t some artsy fart writer’s retreat from the real world. I’m in here to heal myself first and foremost and any good I can do along the way for others is just an extremely happy side effect. I’m allowed to falter, I’m allowed to doubt, I’m allowed to fear, and I’m allowed failure but I am NOT allowed to give up on anything or anybody.

Ok, I’ve got this now. On with today…

Post Panic Face
Post Panic Face

So that’s what we have to expect now, I guess. It ain’t always gonna be pretty…

 

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Jason the Cancer Troll

I am the benevolent Cancer Troll.

21 thoughts on “Chemo Sesh #4: Reality Arrives”

  1. Chemo turns to #screamo. It sounds terrifying, but it’s just a bad trip man, just a bad trip, you’re going to make it through. Here’s my hand, feel that? it’s a normal hand, you’re going to be ok. Look at the pretty colors, the colors are still pretty in this bad trip, aren’t they? Beauty doesn’t know how to run from fear. Beauty is domesticated in this scary moment, like a deer that doesn’t know you could have a rifle. Hang on to the beauty.

  2. This is your best post yet.. Unfortunately probably your worst experience so far but it was amazing. You are so inspiring. Thank you for sharing!

  3. Knowing that it’s going to get worse and actually experiencing it are two different things. So now you’ve experienced it and you’re still able to write about it – that’s wonderful. And yes, you are allowed to falter, doubt and fear, but so good to hear that you will never give up. We’re all pulling for you. What an amazing doctor you have! I hope you can feel some peace today.

  4. Sometimes it gets real…real real. Keep writing and try to let go of the need to make us laugh. This isn’t funny. It sucks big time. Take care of you, kicking cancers ass is your number one priority. Remember, even though it feels like it, you are never alone-ever. You are one #leucky dude….really.

  5. You are an inspiring writer and your humor comes through all of it. I believe your words will help a lot of people in many different situations and you should publish your writings.
    Hang in there and I sent you a small prayer shawl last week. Let me know how you liked or didn’t like the “Les Miserables” . I was a beggar in it and also one of the Bishop’s servants.
    You are in my prayers and I put you on our prayer chain. I do have a strong faith or would not have gotten through a lot of stuff in my life.
    Hang in there.
    Love and hugs,
    Judy

    1. i LOVE the shawl. love it. the colors are perfect for me and it was beautifully made. I recieved it a few days ago and was able to give my mother your letter last night when she arrived. I haven’t had a chance to watch the DVD yet, but it is surely on my list 🙂

      thank you again for the shawl, it’s gorgeous and i will cherish it. truly

  6. Keep going Jason! You’re doing great! You’re allowed moments of weakness and complete breakdown! That’s what shows you that you’re very much alive and fighting! Prayers are with you!

  7. Whoa. Thank you for letting us in on your journey. This post makes me want to hug you and your doctor (though I’ve been hugging you in my thoughts for weeks now). What amazing people your doctors and nurses are- I’m so thankful for those kind souls being there for you right now. Keep kicking ass Mayor.

  8. Jason, I have just discovered – what? – your blog, your illness, your courage, your humor, your honesty, your writing skills – everything! Remembering your talent, sense of humor in grade school, etc, I’m not surprised by what I have discovered here in these pages.
    Know that you are an inspiration. It takes guts to continue forward, and sometimes falling apart helps with the movement. It’s all a part of healing and getting better. My thoughts and prayers are with you. Keep fighting! You alone have the bravery to keep on keeping on! My thoughts, love, and prayers are being sent out strongly! Hi to Mom for me.

  9. You are most welcome, Jason. If I lived closer, I would also come to visit you. We have college friends in Denver, but they usually come to Florida or we all go on a cruise to re-acquaint. Should you ever need anyone in Denver for help, my friends Ruth and Bruce would be there in a flash!
    As I said – you keep on keepin’ on!
    Ann (If you can see your way clear to do so, start calling me Ann)

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