Look at this. Look at those little dangling blue things with the orange nubs. Those nubs are where I have been connected to my IV pole since 1/22/2015. At this very moment, and until about noon tomorrow, they are completely DETACHED from any and all wires and tubes. I am disconnected, COMPLETELY FREE, for the first time in weeks.
I am “profoundly neutropenic,” aka my immune system is basically non-existent. This means that I need to minimize the contact of my insides with the outside world of germs as much as possible to avoid infection. Unplugging me from my tubes creates a point of contact, thus we try to avoid it at all costs. My IV lines do need to be changed every so often, though, and that’s what’s happening right now. I don’t have any scheduled IV inputs for the next twelve hours so there is no reason to reattach me until then.
So now I can spin around. I can do a cartwheel. I can take a shower. I can change my shirt without threading wires through my sleeves. I don’t have to worry about stepping over wires or cords or being plugged into the wall. I’m sure some of you understand this feeling…if you who have spent significant time on crutches, in a wheelchair, or those of you that live in an Iron Lung.
I AM FUCKING FREE.
It’s only temporary, but I AM FREE AND IT IS GLORIOUS.
I’ve posted before about the relinquishing of control and the acceptance of a lack of freedom, and all of that still applies, but that’s a mental game. I’m talking pure physical freedom here. There’s no better feeling than throwing down your shackles and having the ability to FLY.
I AM FLYING.
I’m currently soaring in the air with my arms out to my sides doing barrel rolls in the sky. The tips of my fingers are glowing and I’m shooting chemtrails of pure fairydust out my ass.
Tomorrow I will be plugged back in and remain that way for a few more weeks, but for the next twelve hours I’m the Lueckiest guy in the world.
This post brought to you by unadulterated self-indulgence. No other purpose than to express my excitement.
And of course don’t forget this one: https://www.youtube.com/watch?v=SUfP6IGQD00
#disneyfied
Enjoy your freedom!
Hi Jason; maybe you remember us..it’s ben a long time since we last saw you.
We’ve been following your ‘troll’ and pray for you daily. Mom is there now & for sure she will help make things better with lots of TLC. You seem to be fighting this thing with a lot of humor, good friends & of course faith in the ‘cure’
Jim & I will be keeping up to date with all your posts, & pray that you will be free
for longer periods of time soon & this ‘saga’ will come to an end with happy healthy days ahead
The Houseman’s, Sandy & Jim
Of course I remember you! Thank you for checking in, I appreciate it very much 🙂
-Jason