Cool Hand Leuk

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Just screwing around while receiving some blood platelets….and because I’m a narcissist who likes to “photoshop” himself for fun. I’m Leucky enough to have the free time at the moment!

I haven’t seen the movie, but I do know that I’m better looking than that Paul Newjerk guy.

And yes, I did have a cigarette smuggled into the oncology unit for this picture.

 

The Cancer Perception

I’m going to let you in on a secret. So far my #leuck levels have kept me slightly beyond the reach of the long arm of the Leukemia Law, but there is a chance that I’ll be karmically asphyxiated by my own IV line for sharing this with you:

Cancer can be beautiful.

It goes against all thought, reason, logic and belief that something synonymous with death, decay, destruction and unspeakable heartache can be beautiful…

But cancer CAN be beautiful and it IS beautiful…. if you look at it right.

We all have an image of cancer ingrained in our minds. Every person on this earth has been touched by cancer, most likely in the most negative way possible. This negativity automatically evokes tragic images of suffering, loss, sadness and pain. They probably look something like this (but far worse in most cases):

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Continue reading The Cancer Perception

Cancer Won’t Stop me, but the Hiccups Almost Did.

Out of all the prodding, poking, tripping and falling over my own IV chord, peeing and pooping in plastic containers, bruising, paper cuts from too much mail (humblebrag like whoa), needle stabbing, vein threading, flashburing my insides with napalm chemicals, bone sample slicing, spinal tapping, tears of pain and the ultimate battle to decide true existential worth (or lack thereof) fought by Kierkegaard and Nietzsche’s at the Bridge of Khazad-dûm….

 

Did you guys know how nerdy I am?
Did you guys know how nerdy I am?

…nothing has compared so far with the physiological/psychological trauma that came from a crippling case of THE HICCUPS.  Continue reading Cancer Won’t Stop me, but the Hiccups Almost Did.

CancerTrolling.com is LIVE

Hey Friends, Fans, Families, Lovers, Laughers, Well Wishers, Followers, Supporters,

With a lot of help from a lot of helpy helpers we are officially unveiling cancertrolling.com. HERE!

 

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It’s basically just a migration of this blog, but with a straight up legit domain name and stuff. We’re working on getting all the old blog links to transfer over to the new site at a single click, but I figured I’d just drop you a note here and let you know that you should be accessing all things CancerTrolling over on the dot com from now on. No more need for the dot wordpress junk.

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As I’ve made it blatantly aware, this blog started out as a conduit for my brain and fingerrhea, but seems to be growing into something much bigger. The support this ide  has received in just over a week has inspired me to do more with my life and (dare I say) talents than the previous 30 years. Please bear with me as I go through some growing (and cancer) pains while I try to grow the scope of this brand/empire/fuckfest into its true vision.

Stay tuned for some more fun, exciting, human, real, gritty, informative content to come!!!

Anything is possible with a little #leuck

Staving off Cabin Fever: Hunting for RNs

Among blood clots, bed sores and other physical ailments caused by sedentary life in the oncology ward there is another,  even more dangerous enemy: Cabin Fever.  The doctors want us to keep on our feet as much as we can because being physically healthy is a healthy idea when you are already unhealthy and blah blah blah ugggghhh shut up I’m not listening. My doctor threatened to light a few matches under my shoe earlier today if I didn’t make an effort to get some hallway time (similarly to when we throw a racket ball down my apartment hallway for Dumb Dumb Ruby to chase). We’re supposed to walk three miles a day,  the hallway of the oncology unit is 28 laps to a mile, and the hallway looks like this:

BORING
28 x 3 x that= NERP

Compare that close-out WalGreens aisle to the sexual vibrancy of color, light and magic that exists within the confines of my Studio 54 Quarantania:

NOT SORRY
DEAL WITH IT

There is a clear winner when it comes to inviting atmospheres, and it surely isn’t the neutered network of fluorescent vas deferen outside my door. I tried to convince my doctors and RNs that I get plenty of exercise by bouncing my legs along to the sweet jams I be pumpin’ in here all day long but they still insist upon the fact that I leave my room and exercise my dumb body, despite the fact that I’ve been spending 30 years purposely punishing it.

I decided, regardless, to be a good little patient tonight and venture out into the vapid hallway… but on MY terms. I wasn’t just going to walk up and down the hallways like your local mall’s Bitchin Blue-Hair Betty Brigade… No, I WAS GOING ON AN ADVENTURE.

Continue reading Staving off Cabin Fever: Hunting for RNs

Chemo Sesh #3: Getting Gritty

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Today (1/31/2015) marks the beginning of my second round of chemo. Yes, this is the third Chemo Sesh, but there are three(ish) seshes within each round of chemo.  Today’s genocidal drugs that inflated my veins like a mutant carnival balloon animal were the same compounds that first entered my bloodstream a week ago on day one. The first implementation of these drugs, as you may remember, resulted in a slight metallic taste in my mouth and some neon peach pee pees.

That's only normal after music festivals...
That’s only normal after music festivals…

According to the lovely and brilliant Ashley RN, this is the dose of the chemo that I should start feeling….hence the artsy fartsy color corrected picture above! Expect some more nit, grit, snark and dark. Continue reading Chemo Sesh #3: Getting Gritty

Our Chemo Romance

Chemo Romance, not that crappy band….

One of the hardest things about having the immune system of a kitten born prematurely with unrelenting feline AIDS is the lack of human contact. My chart says that I am “profoundly neutropenic,” which means that my white blood cell count is lower than snake piss (as we used to say in Upstate NY.) An errant fart could kill me at the moment, so everyone who enters my hospital suite has to wear a mask, gloves and a really stylish yellow gown made out of low-grade paper towels. My doctors and nurses handle me constantly, so I do have SOME contact, but that’s obviously not what I’m talking about. This is about being around my girlfriend.

To put it bluntly, my current physicality with Liana is about as fulfilling as a Mormon safe sex pamphlet. Ever since we’ve been separated by sterile barriers, I’ve realized how much I’ve taken for granted… There have been no hello kisses, no hand holdings, no skin-on-skin snuggles, no hair smellings (keeping this rated G, you PERVS.) The last feeling I had before falling asleep every night used to be her lips against mine, or at the very least a stray hand that fumbled toward me in the dark to maintain a symbolic contact.
Continue reading Our Chemo Romance

Leukemia Office: Rm 4217, Cancer Inc.

Good Afternoon. How are you?
You weren’t kept waiting too long were you? Do you need anything a drink? Water? Coffee?

<Cancer Secretary, Did you take care of these nice people out there? Ok, thank you! Hold my calls for a while please!>

She’s fitting in so well here, I’m glad I hired her. Things have gotten MUCH better around these parts. Please have a seat.

Hold on, I’ll be right with you. Just gotta sign this thing….

Continue reading Leukemia Office: Rm 4217, Cancer Inc.

Cathartic Vulnerability

Today marks one week of living in my temporary hospital home. It honestly feels like I just got here because I’ve been so damn busy. Would it surprise you to know that I haven’t watched a single minute of visual media (other than the morning news while I drink my coffee and eat my 8 pieces of bacon— shut up, my oncologist told me to eat whatever the hell I want: DOCTOR’S ORDERS) or read a single sentence of leisure reading? I’ve been sitting in this 200 square foot room for an entire week with no “work” to do and haven’t been bored once. I’m as astounded as you are considering that I can’t sit around my apartment between 5-10pm with out going a bit stir crazy every weekday. I suppose the blog and the hourly circulatory system rapings help pass the time… but still.

I guess I should be counting my blessings that this isn’t some sort of brain cancer that robs me of my ability to focus, if such a thing even exists. One full week of total mental stimulation and productivity, one full week of new and exciting (for better or worse) experiences, one full week of thoughts and emotions that I ignorantly never expected to have.

Today was actually the first day that I felt less than stellar physically. I was warned that this would happen and I’m prepared for it. At the risk of sounding pretentious or full of myself, the brave face that I’ve put on is absolutely genuine and is not a happy clown mask hiding a sad clown face… but I would be lying if I weren’t without my moments of fear, doubt and vulnerability this week. This blog has been light and positive, funny and uplifting, but it has always had the intention of being a an unfractured reflection of my true experience with this life changing kick in the dick.

Continue reading Cathartic Vulnerability

Letter Home from the Dorm: My Class Schedule/Syllabus

Dear Home,

Hey guys! So our RAs said it would be a nice idea if I wrote you a status letter, since I’m approaching the end of my first week here at the Colorado Blood Cancer Institute Dorms. It’s been quite the learning experience… All the other kids are cool, my RAs seem pretty chill (though they are awfully strict about some things, and I’m sure I’ll have to towel the door and hide my Coors Light behind the soda in my mini fridge) and the cafeteria food isn’t THAT bad. I miss the privacy and comforts of home, but the excitement of co-ed communal living also has its benefits. Sometimes I get to hang out in the common room with the other kids in the dorm and chillax out with some sick puzzles and crossword books. It’s pretty dope and chill and stuff.  It’s not all about leisure time though, I’m here at the institute for a reason and that’s what I’ve been focusing on. I’ve pretty much committed my class schedule and syllabus to memory at this point, so I feel like I’m in pretty good shape to get my money’s worth and graduate on time with a better than average GPA. You’ll be proud of me, I promise.

Here is a rundown of my daily life at the institute:

Continue reading Letter Home from the Dorm: My Class Schedule/Syllabus